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Participation seven years after severe childhood traumatic brain injury

Abstract : Purpose: Participation in home, school and community activities is considered as the ultimate aim of rehabilitation. The aims of this study were to examine participation seven years post-severe childhood traumatic brain injury and factors associated with participation. Materials and methods: Participants were enrolled in the Traumatisme Grave de l’Enfant (Severe Childhood Injury) cohort study following severe accidental childhood traumatic brain injury. Participation seven years post-injury, was examined using parent- and self-report forms of the Child and Adolescent Scale of Participation among 37 patients [62% males, mean age 15.4 years (SD = 4.4), mean length of coma 6.68 days (SD = 4.96)] and 33 matched controls. Results: Parent reports indicated significantly lower participation among patients compared to controls, but the self-reports did not. In the traumatic brain injury group, parent-reported participation was variable, with 22% of the patients clearly showing greater restrictions than controls. Participation restrictions were significantly associated with injury severity, poor functional outcome one-year post-injury, executive and behavioral difficulties and higher fatigue levels seven years post-injury, but not with pre-injury nor family factors. Conclusions: Several years after severe childhood traumatic brain injury, participation appears to depend more on injury-related factors than on environmental factors. In self-reports assessments of participation, it could be difficult for children and adolescents to distinguish capacity from performance.
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Submitted on : Tuesday, November 24, 2020 - 2:11:20 PM
Last modification on : Tuesday, December 8, 2020 - 3:43:57 AM


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Hugo Câmara-Costa, Leila Francillette, Marion Opatowski, Hanna Toure, Dominique G. Brugel, et al.. Participation seven years after severe childhood traumatic brain injury. Disability and Rehabilitation, Informa Healthcare/Taylor and Francis, 2020, 42 (17), pp.2402-2411. ⟨10.1080/09638288.2019.1594398⟩. ⟨hal-02938403⟩



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